Bryan Jones Story

In July, 2020, Bryan and Lindsey Jones celebrated 20 years of marriage. Shortly after, they received earth shattering news. Bryan was diagnosed with ALS (Lou Gehrig’s Disease). After several months of Bryan having increasing speech issues, many doctor visits and tons of testing, they had their answer. But it was the one diagnosis everyone was praying it wasn’t.

ALS is a degenerative neuromuscular disease for which currently there is no cure. Every person diagnosed with ALS has a different progression. But one thing that is for sure is that this cruel and unforgiving disease requires a lot of changes for families and is financially burdensome. Typical annual care averages at $100,000.

Bryan’s specific diagnosis is Bulbar Onset ALS, meaning his symptoms have started with speech and swallowing difficulties. If you would like to learn more about Bulbar Onset ALS go to

All proceeds from this fundraiser will go directly to Bryan and Lindsey to help them with medical bills and other expenses.

If you can’t make it to the event but would like to donate, please visit: